Friday, August 12, 2011

Some Real News

As I pack my jeans away in a full drawer, a tinge of pain trickles up my forearm, through the shoulder, and up the lower portion of my neck. If I straighten back up and stand still again, I can't feel it at all. A nice relief.

It started out innocently enough. My right shoulder. It gets used a lot. I throw with it. My right hand wrestles ropes from the Irish Terrier. Frisbee golf, and even some Ultimate are new experiences for it. And besides, I've slept on my shoulder wrong countless times only to wake up with a stiff joint and pain through mid-morning. Certainly there was nothing wrong that a few days rest couldn't take care of. After it heals up, I'll be able to sleep comfortably again.

After about a week of mild discomfort, instead of getting better, the aches moved a little farther toward the neck, then continued to inch up. A little unusual for some overworked muscles. But optimism persists, well, because the patient is on treatment to keep things at bay.

My sense of optimism isn't absolutely unshakable though. It began to fail me a few nights before the upcoming engagement with the doctor. A tinge of worry. Two days later, the family loaded up into the car for the usual trip into town to the clinic. Transposing from reception area to waiting room always involves a journey past the doctors' preparatory area where we noted the doctor staring blankly at a screen, as if not knowing quite what to do with it. Certainly it is hard for doctors to have undesirable news, as it is for patients to receive it.

I hint then, at the coming events, trying not to get ahead of myself. Naturally, the doctor will enter the room. He will bring news. And it will not be good. There are few good ways to tell a patient that the recommended treatment, touted as the very best option, has done nothing for him and will be discontinued. The doctor delivered it in the best way he could. And for that I commend him. He is indeed a good man, if limited in resources.

For the moment, I give you the dry version of the story, which is easy to tell. A later session will highlight other aspects. The lesson here is that my treatments have, for the time being, come to an end. I have one more treatment option which is a drug cocktail similar to what I received as the first line of treatment. This worked well the first time, and I am hopeful that it might work with some success the second time around. But the chances are slight. The other possibility is to submit to the unknown and dive into a promising clinical trial. My doctor is placing phone calls, perhaps as I write, to the various medical clinics around the country to identify potential clinical trials that might be an option for me. I do remain hopeful! A bit of good news, a CT scan shows my brain is still in working order, and no sign of disease there. Other good news is that Rapunzel still floats cheerily in the corner of my room, frozen in a perpetual state of brushing out her flowing locks.

8 comments:

  1. Oh, I forgot to mention a key point: the source of the shoulder pain. It is known as referred pain. I have a rather large mass in my liver. But because the liver doesn't have pain sensation, it can't let the brain know that it's in trouble. So it tattles. It causes another part of the body to hurt so that the brain knows there's some cause for alarm. So the source of my shoulder pain is actually from my liver. I found that fascinating. The heart does the same thing when it's diseased.

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  2. This is a good way to honestly share some difficult material that may not easily fit into light social banter. You are a good observer and I encourage you to continue writing.

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  3. Other referred pain that is interesting:
    Neck, sinus, jaw ---> ear
    Gallbladder --> shoulders
    Colon, uterus --> back
    Hip --> groin or knee
    Lumbar Spine --> hip or leg
    Kidney, ureter, bladder --> testicle

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  4. I miss that dry sense of humor and honest look at life! I am praying for healing, encouragement, and strength for you. I am so, so, sorry for the bad news. May the Lord bless you and keep you. Kim Malski

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  5. Adam, you write well, better than before the troubles, a small compensation, but not unappreciated. Would that the unequal yoke between creativity and vital threat could be broken by sacrificing the former, a small concession for the sake of life.

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  6. Praying for you Adam.. I really like the last two sentences :)

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  7. Not quite sure what to say, but we are all praying for you, Adam. Thanks for the update... you are an excellent writer.

    Amy & Matt and family :)

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  8. wow. Way to keep the sense of humor! (Really that closing line was hilarious.) Keep it up!

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